Advice and Support
This page lists advice and support services available for
disabled young people and their families.
The page is divided into the following categories:
1. Advocacy
2. Bullying and
Disability-related harassment
3. Knowing Your
Rights
4. Support - Local
Areas
5. Support -
National
6. Support -
Scotland
7. Support - Northern Ireland
1.
Advocacy
Access to
independent advocacy: an evidence review
This report from
the Office for Disability Issues includes a chapter looking at
advocacy for disabled young people in transition to adulthood.
Advocacy Resource
Exchange
Advocacy Resource Exchange helps meet the changing needs of
any who seek advocacy intervention for whatever reason. They
do this through promoting and supporting the provision of a choice
of advocacy models to a broad range of disabled and/or
disadvantaged people in order to secure their Human and Civil
Rights.
Children's Rights Officers and
Advocates
Children's Rights Officers and Advocates deliver
a wide range of advocacy, children's rights and participation
training for adults and young people.
Muscular Dystrophy Campaign - Advocacy and advice
The
Muscular Dystrophy Campaigns team offer free advocacy, support and
advice to anyone who is experiencing difficulties with their local
services.
National Standards for the Provision of Children's Advocacy
Services
The standards set out the core principles that
children and young people can expect from professionals providing
advocacy services.
2.
Bullying and Disability-related harassment
ACE - Tackling Bullying
This page provides an introduction
to tackling bullying at school.
Anti-bullying
Alliance
The Anti-bullying Alliance is a coalition of
organisations and individuals working together to stop bullying and
create safe environments in which children and young people can
live, grow, play and learn.
Bullying Involving Children with
Special Educational Needs and Disabilities
This guidance is part of the government's anti-bullying strategy:
Safe to Learn: Embedding anti-bullying work in schools.
Buylling Wrecks Lives
A report by Mencap about the experiences of bullying of children
and young people with a learning disability.
Bullying and children with a
learning disability
This factsheet explains what bullying is and why it takes place. It
looks at some ways you can try to prevent bullying from happening
or to stop it when it is happening.
Don't stick it, stop
it!
Mencap's campaign to against the bullying of children
and young people with learning disabilities.
Hidden in plain sight - the inquiry final report
'Hidden
in plain sight' is the final report of the EHRC's inquiry
into disability-related harassment. The report uncovers that
harassment is a commonplace experience for disabled people, but a
culture of disbelief and systemic institutional failures are
preventing it from being tackled effectively.
Out in the open - Tackling disability related-harassment: A
manifesto for change
In this follow-up to Hidden in plain
sight, the EHRC summarise a wide range of formal
responses from relevant organisations and set out their final
recommendations.
Stop
Disability Hate Crime
Disability Rights UK has produced a
number of practical guides aimed at stopping disability hate
crime.
3. Knowing Your
Rights
A short guide to the equality duties for social care service
users
Easy read guidance to the Equality Duties to support
people with learning disabilities when engaging with public
authorities to challenge institutional discrimination.
Disabled Children: A Legal Handbook
Disabled children: a
legal handbook is an authoritative yet accessible guide to the
legal rights of disabled children and their families in England and
Wales. It is available for free online.
Equality matters
for children
This website has a wealth of information for
both children and adults on children’s rights under equality
law.
Learning and your rights
This DirectGov webpage provides
information on the Equality Act 2010 and how it has increased
protection for disabled learners against unfair treatment.
Meningitis Research Foundation
Disability Rights and Benefits
The Meningitis Research Foundation has a tool for people affected
by meningitis and septicaemia to guide them through the
disabilities rights and benefits system.
Ours to own: Your human rights
This easy read booklet
explains what human rights mean in the context of everyday life,
how they have affected real people and why they are therefore so
important.
4. Support - Local
Areas
Cornwall
Council
Website includes easy read information about
services for people with learning disabilities.
Young Adult Network
Devon
The Young Adult Network Devon is a group of disabled
young adults in Devon, who came together to ensure Living Options
Devon were involving young disabled people in its work and in local
and national consultations. The young adult's network has 5
key themes. These are information, involvement, education,
campaigning and peer support. For information, Please contact
[email protected]
or 01392 459222
Essex County Council
Information about transition by
Essex County Council.
Families Acting for Change Essex
(FACE)
Membership of FACE is free and gives access to
current information and the chance to contribute to focus groups
and consultations and to become more involved in any way that suits
you and your family.
Harrow4U
Information for
disabled young people in Harrow.
Hertfordshire
Council
Information about transition by Hertfordshire
Council.
Centre for Independent Living in Kent
(CILK)
CILK was formed in April 2002 to support the
positive promotion and uptake of Direct Payments and Independent
Living for Disabled People living in Kent.
Living Options Devon
Living
Options Devon is a user-led organisation which works to ensure
that disabled people can live the life they choose. In
June 2012 they set up a Young Adults Network for people under 25
years old.
Manchester Learning Disability Partnership
(MLDP)
MLDP provides health and social care services to
help people attain a good quality of life.
Parent
Partnership Services
Parent Partnership Services are
statutory services offering information advice and support to
parents and carers of children and young people with special
educational needs. Every Local Authority has a Service, find yours
here.
Our Way
Our Way is a self
advocacy group for disabled people in Wyre Forest.
Youth Lambeth
The Youth Lambeth
website provides a directory of services, activities and
events for children, young people and families in Lambeth, as well
as up to date information about registered childcare vacancies.
5. Support - National
Action for
Children
Action for Children provide specialist help
for disabled children, young people and their families. Their
disability services include residential and short break care, help
dealing with challenging behaviour, specialist education and
leisure opportunities, and programmes such as the Access to IT
project.
Advisory Centre for Education
(ACE)
ACE provide the information, support and
high-quality advice that parents need to help their children at
school, particularly where there are problems.
Carers Trust
The Carers Trust
works to improve support, services and recognition for anyone
caring for a family member or friend.
Challenging Behaviour
FoundatioN (CBF)
CBF provide information and support to
family carers and professionals caring for individuals with severe
learning disabilities and challenging behaviour.
Changing
Faces
Changing Faces is a charity that supports children,
young people and adults with disfigurement on the face or body.
Contact a Family
Contact a
Family provides advice, information and support to families with
disabled children. They also provide medical information on
disabilities and rare disorders and details of support groups
throughout the UK.
DIAL UK
A national
network of over 120 local disability information and advice
services run by and for disabled people. It provides information
and advice on welfare benefits, community care, equipment,
independent living, mobility and transport, discrimination,
holidays and much more.
Dimensions
Dimensions
supports people with learning disabilities and autism across
England and Wales to live the lives they want.
Disability Rights UK
- Advice
Factsheets, telephone helplines and links to
other organisations.
Family
Lives
You can talk to Family Lives about any family issue
big or small via phone, email, online chat or face-to-face.
Foundation for People with Learning
Disabilities (FPLD)
FPLD works to promote the rights,
quality of life and opportunities of people with learning
disabilities and their families.
I CAN
I CAN offers
parents and practitioners the opportunity to book a phone call to
talk to a speech and language therapist. The call-back service
provides expert information about speech, language and
communication.
Info 4 Care
Kids
This website is for looked-after children and
young people. It is designed to help them know what care
and support they can receive and what choices they have. The
site also offers advice to those who are preparing to live on their
own.
Mencap
Mencap provides
information and support to people with learning disabilities and
their families.
Muscular Dystrophy
Campaign
The Muscular Dystrophy Campaign offer free
advocacy, support and advice to anyone who is experiencing
difficulties with their local services.
National Autistic Society
The
National Autistic Society provides information, services and
support, and campaigns for a better world for people with autism
and Asperger's syndrome and their families.
National Deaf Children's Society
(NDCS)
NDCS is dedicated to creating a world without
barriers for deaf children and young people.
National Parent Partnership
Service (NPPN)
NPPN lists the contact details for all
Parent Partnership Services (PPS) in England. PPS's provide
advice to families with children with special educational
needs.
Netbuddy
Netbuddy contains
over 1,000 tips from people with first-hand experience of learning
disability, autism and speical needs.
Royal National Institute
of Blind People (RNIB)
RNIB is the leading charity
offering information, support and advice to almost two million
people with sight loss.
Royal National Institute of Blind People (RNIB) Young People's
page
Are you under 25? On these webpages you'll find
information on a wide range of issues that are important to blind
and partially sighted young people.
Scope
Scope is a charity that
supports disabled people and their families.
The Autism
Directory
The Autism Directory provides signposts families
to information about autism.
6. Support - Scotland
Autism Network
Scotland
Provides a Scottish hub for reliable
information to individuals, to families/carers and to
professionals.
Lead Scotland
Lead Scotland,
(Specialists in Linking Education and Disability), is a voluntary
organisation set up to widen access to learning for disabled young
people and adults and carers across Scotland.
Parenting across Scotland
This website contains
information and support for families in Scotland. This link takes
you to their webpage on transition.
Scottish Autism
Scottish
Autism is an autism charity that exists to help those diagnosed
with autism to lead full and enriched lives and become valuable
members of the community they live in.
Speak Out Advocacy
Project
Speak Out is an advocacy project which is managed
by Ace Advocacy and funded by South Lanarkshire Council and NHS
Lanarkshire. Speak Out aims to help people with learning
disabilities to speak up for them-selves so that they can
participate in decisions about their lives. If a person cannot
speak up for themselves, Speak Out will provide a spokesperson who
will express that person's opinions as if they were his or her
own.
The Scottish Child Law
Centre
The Scottish Child Law Centre is the only Law
Centre in Scotland that works exclusively for children and young
people. They provide services throughout the whole of Scotland.
Values Into Action
Scotland
Rights, choice and control for people with
learning difficulties and individuals on the autistic spectrum
7. Support - Northern Ireland
Parents Carers Council for Disability
Northern Ireland
The Parents Carers Council for Disability
was established in Northern Ireland to advocate on behalf of
parents/carers, their children, young people and adults with
disabilities and their families promoting an understanding of their
unique needs.